Just a quick post to update.
J saw a pediatric gastroenterologist today. They think he has a reflux issue. He'll start getting treated with some meds. Hopefully, if food stops making his tummy hurt and he stops gagging and throwing up, he'll be more inclined to eat. I think his eating is slowly getting better, and I think his time is starting to improve also ... it no longer seems to take the boy several hours to eat a quarter of a sandwich. So that's good.
What's great, though? He's in the 25th percentile for height and weight! We've gotten so used to a struggle - used to hearing bad news ... he's below the 5th percentile ... try this nutritional supplement ... he's too small ... if he won't gain, we'll have to do a G-tube ... failure to thrive ...
So yeah. Today was such a welcome change. Today, we got good news. He's smaller than averaqe in both height and weight. But at last, he's on the charts. He's not a malnourished starving kid who needs to be tube fed. He's not stunting his growth by refusing to eat. He's in the normal range, at last!
Now the trick is keeping him there. But I am feeling optimistic now. Sweet little J may be okay yet. We keep plodding along, and do our best.
It's all we can do.
3 comments:
Sorry to hear about your situation. I went through a similar situation one with my daugther for nearly a year. In the end it turned out she had Celiac Diease. However had the same issues, couldn't hold food down etc. She had a Feeding Tube, G-tube and finally a Main Line IV feed directly to heart vessel for IV food (TPN). Thank God finally her GI Specialist kept testing and probing and didn't give up and determined what it was. Than she made a complete turn for the better.
My son had the same thing. There were many nights of getting him to sleep while trying to keep him upright. Eventually he transitioned to sleeping in the car-seat for a year and a half. Glad the Dr's have been able to come up with something.
That's huge news! You should celebrate with a non-nutritionally supplemented dessert!
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